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Post by mamastirls25 on Oct 20, 2008 9:53:53 GMT -5
Hi everyone just wanted to update you all on what has been going on since i last posted, Ethan had his MRI and it showed that the mega cisterna magna is about the same maybe a little bigger and that he has a chronic sinus infection We went to the dr's on friday and he put him on another antibiotic and we are awaiting a december appt with dr kanev in massachusetts for the cyst in the brain In the meantime we have gotten the woodstove fixed so we have heat finally  and i am applying for wic and heap CPS was in the house on Friday because the school turned me in for educational neglect apparently they were not happy with the dr's note ,,, the dr has advised us to homeschool ethan until his appt in december there is never a dull moment in our house lol I have just been pluggin along day by day I was even able to pick up a few things for the kids for christmas this weekend i dont know what we will be doing financially at christmas since ethan has to be at the shriners on the 19th of december so im trying to start a bit early I hope you all have a wonderful and blessed week Michelle |
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Post by Clipper on Oct 20, 2008 10:34:58 GMT -5
Were they unhappy with the dr's note, or simply there to advise on the requirements for homeschooling? There is more to homeschooling than to sit at the kitchen table and do times tables and read a book. The state has only the welfare of the child in mind, when setting the parameters for satisfactory progress.
Glad y'all got the stove fixed and are staying warm. I hope heap and wic come through for you.
As for christmas, I hope you are able to provide a few things for the kids to open, but it sounds like you have many issues in life that take a much higher priority that christmas presents. A few inexpensive things and an early celebration sounds like it is in order. If you can't afford fuel oil and food, you can't afford expensive and gaudy luxury items for christmas. I know we all want to make christmas a wonderful day for our kids, but I was brought up in a family that was far from wealthy. We always received nice gifts, but not expensive. My thoughts always ran toward the family celebrations and dinner at grandmas house, rather than toward bright colored paper, and trashy plastic toys. Love and nurturing are the greatest gifts you can give your boys at his point.
I will keep y'all in my prayers as the time for his appointment in Mass. approaches. We will all hope for a good prognosis and treatment. Keep the faith young lady. Chase self pity from your doorstep, and thank God for what he DOES give you, while trying to deal with what he HASN'T. It is very difficult not to feel sorry for yourself when life gives you lemons, but self pity is counter productive and distracts our minds from productive things that we could be doing, to improve our situations. Hang in there.
It is my belief that he chooses special parents for special needs children, and he has chosen you and your husband. He will not let you down. If he brings you to it, he will bring you through it. My condolences for your daily strife, but keep the faith. It WILL get better, and it WILL work out in the long run. Your husband must be a very hard working and determined man. He will guide the family through the strife and into the light of day. Be proud, and be assured that it will be okay. While God may seem to be letting your ship take on water, he will never let it sink as long as you keep the faith.
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Post by dgriffin on Oct 20, 2008 12:54:16 GMT -5
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Post by frankcor on Oct 20, 2008 13:23:10 GMT -5
When it's time to teach the 'healthy distrust of government' syllabus in social studies, be sure to give me a call.
::snicker::
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Post by mamastirls25 on Oct 20, 2008 14:17:16 GMT -5
Thanks for all the help everyone ,, Clipper i can assure you that gifts for my kids arent the top priority right now in fact i did my shopping at the good ole dollar tree no expensive gifts there thats for sure Scott and i have joined the HSLDA which is legal aid for homeschooling parents, Clipper the problem with the school was that they didnt do what they should have and overstepped their boundary he was out of school on a note and they didnt like it so they called CPS what they should have done is contacted us and his dr first, CPS said they are finding it unfounded I have a room in my house that scott and i use at the school area for ethan and we spend a good portion of our day on schooling he is on a 1st grade reading level and is reading books so i must be doin something right He will go back to school once he is medically cleared i dont want to homeschool forever Dave thanks for the links |
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Post by Clipper on Oct 20, 2008 15:36:38 GMT -5
I was not accusing you of neglecting the studies, simply of maybe not being totally familiar with the program. I had a friend that had a kid with epilepsy and cerebral palsy. They homeschooled for a while, but when they found out what it entailed with all the legal issues and required curriculum, they decided to send the boy to cerebral palsy's daycare center and then to BOCES later on.
When it comes to children and their wellbeing, I don't think the school OR CPS can overstep as long as they rule on the side of safety and well being of the child, even if they are a little overzealous. You may be personally offended, but be glad that they are concerned for your son. It is important for you to work WITH the authorities and not form adversarial relationships with anyone. However big a pain in the butt they are, they have a purpose. It may not be appropriate in your particular case, but ALL parents aren't as responsible as you and Scott.
If you need and accept help from the system, you simply have to deal with the inconveniences of dealing with the folks in the catbird seat. Sad but true and necessary. My sympathy is with ya. You have a lot on your plate, but fighting the system will not resolve anything.
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Post by stoney on Oct 25, 2008 14:50:10 GMT -5
Did you contact RCIL regarding your son? They could be of help when it comes to the school providing appropriate services for him.
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and i am applying for wic and heap
